Trigeminal Neuralgia Charities

 

Professor Joanna Zakrzewska has put a lot of effort into improving both patient support and the treatment of Trigeminal Neuralgia ("TN") by founding and/or supporting voluntary organisations outside universities, the NHS and other medical services.

Trigeminal Neuralgia Assocation UK

In 1999, together with a patient, Joanna founded the Trigeminal Neuralgia Association UK ("TNA").  This is a very active patient support group today.  For further details see its website tna.org.uk.

 

 

In 2022 Joanna co-founded the The Trigeminal Neuralgia Institute ("TNI"), registered charity number 1204273, with Ann Hayes and Simon Tate.  TNI supports research projects.  For further details see its website tninstitute.net .

 

Vision

All patients with trigeminal neuralgia to have equal access to evidence-based management provided with understanding and compassion.

 

Mission

• To Discover

• To Teach

• To Care

The Trigeminal Neuralgia Institute will:

1. Promote and run research programmes into the causes, diagnosis and management of trigeminal neuralgia.

2. Train healthcare professionals to have the necessary skills to deliver high quality care to patients with this rare disease.

3. Provide patients with trigeminal neuralgia across the country with a high-quality advisory service for diagnosis and management which would be audited through a national registry.