Advisory Work by Professor Joanna Zakrzewska

• Consultant for Noema Pharma for a phase 2 trial of basimglurant for trigeminal neuralgia and principal investigator in the UK, 2021-.

• Hon. Adviser to the British Association for the Study of Headache ("BASH"), 2022-

• President 2014-2015, Council Member 2016- Pain Medicine Section, Royal Society of Medicine

• Co-organiser 2 day interdisciplinary conference/event Encountering Pain : hearing, seeing, speaking   http://www.ucl.ac.uk/encountering-pain  UCL 1-2nd July 2016. The two-day event and conference provided an opportunity for participants from the projects Pain speaking the threshold and face2face to meet and share their experiences and insights with each other. It also provided an opportunity for other pain sufferers, carers, clinicians, academics, scientists, social scientists and artists to contribute to and expand the debate. It aimed to integrate rigorous scientific and academic research with personal narratives and creative practices.





• Co-Supervisor on project “Pain: speaking the threshold.” The value of visual images in the diagnosis and management of chronic pain. A UCL Humanities Interdisciplinary project
  http://www.ucl.ac.uk/slade/research/projects/pain-speaking-the-threshold

• Consultant for Convergence / Biogen – designed and then Principal Investigator for international  RCT for phase 2 sodium channel blocker for trigeminal neuralgia and now advising on Phase 3 trials 2011 to date

• Vice-Chair: European Year Against Pain 2013-2014 Orofacial Pain preparation of fact sheets http://efic.org/index.asp?sub=F8AMLHLAP9216P&topicsid=314#view

• Section lead on Fact sheets  on neuropathic orofacial pain - IASP global awareness of orofacial pain 2013-4 http://www.iasp-pain.org/Content/NavigationMenu/GlobalYearAgainstPain/GlobalYearAgainstOrofacialPain/default.htm

• President elect - pain section Royal Society of Medicine 2013-2014

• Council Member – Pain section Royal Society of Medicine 2008-2013

• Organiser - 3rd Trigeminal Neuralgia study day in conjunction with members meeting 2013

• Consultancy Convergence advice on Phase 2 trial for new drug for trigeminal neuralgia 2011-to date

• Member of classification taskforce of International Headache Association chapter 13: 2011 to 2013, published Cephalalgia July 2013: Cephalalgia 33: 629-808

• Exhibitions Mask:Mirror:Membrane at Menier Gallery July 2011, UCLH July-Sept 2011

• Consultant  for Convergence – designed, and am now the Chief Investigator of, a multinational RCT for phase 2 sodium channel blocker for trigeminal neuralgia 2012

• Expert International Consensus workshop on orofacial pain taxonomy Florida March 2009, published results

• Expert reviewer Clinical Knowledge Summaries – Minibite on trigeminal neuralgia  2008

• Expert advisor for guidelines for trigeminal neuralgia for American Academy of Neurology and European Federation of Neurological Societies 2004-2007

• Taskforce leader of the Special Interest Group of Orofacial Pain of International Association for the Study of Pain on Classification of Orofacial Pain 2002 – 2005, now on the Scientific meetings committee

• Trustee, and Chair of the Medical Advisory Board ("MAB"), of the Trigeminal Neuralgia Association UK ("TNA"). Joanna founded this national patient support group together with a patient, Elizabeth Boulot, in 1999, as reported in the British Medical Association ("BMA") Dossier on Pioneers in Patient Care.  By 2001 it had 300 members.  Today it has around 1,700 members, annual income of around £60,000, substantial costs and paid staff.
  
  Joanna's contribution during this period included pioneering joint conferences between patients and healthcare professionals, six of which have been accredited by the Royal College of Physicians and have significantly raised awareness among healthcare professionals.  Over the last 23 years organised with the MAB all the annual scientific meetings and latterly speakers for the webinars.  Gave general medical advice to the helpline, attended all Trustee meetings, contributed to the writing of all patient literature and to the regular newsletter.  Published a book for patients and in the latest book included chapters written by members of the TNA.  Kept the organisation in touch with the latest research and advised the Trustees on financial support for projects as well recruiting TNA members for projects e.g. core outcomes in TN, electronic pain diaries, impact of medications on quality of life.  
  Resigned in 2022.

• Only non US member of medical advisory board of Trigeminal Neuralgia Association US which has over 250,000 members and their International Neurosciences Co-ordinator 2011

• Expert advisor to NICE on  stereotactic radiosurgery for trigeminal neuralgia

• Past Chairperson Academic Pain Group  I launched this group in January 2002 (reported in the Br Dent J) whose aim is to gather a multidisciplinary team from the Trust and College to collaborate on research from basic science to public health.

• Collaborator on Wellcome PhD fellowship under Prof G. MacFarlane Manchester establishing the community prevalence and risk factors for orofacial pain – I provided the clinical expertise and training 2002- 2005

• Advisor for PROGIDY Guidelines for GPs on trigeminal neuralgia in 2002, 2005  which are available on the internet  http://www.prodigy.nhs.uk/guidance.asp?gt=Trigeminal%20neuralgia 

• Organized  and then ran an interactive hands on infection control study day for the Faculty of Dental Surgery of  Royal College of Surgeons 2001

• Designed and then set up research program on oral HIV awareness  and oral cancer sponsored by the British Council at the University of Perambuco Brazil 1996- 1998

• Advisor on oral cancer screening programmes to: Port Sunlight, Unilever, Marks&Spencer